Yesterday I wrote about how if you have a disability you are basically can’t get a job.   There’s a lot that could mess up your benefices that the government gives you.  If you’re disability is physical only you can understand that the idea of working is not that early to do not you cannot work but because the help you have to every day could be taken from you.   So we end up creating new ways to have a normal life, or not trying!   I don’t know about you guys, but it seems wrong.   People with disabilities should not feel like they can’t work or own a house because of the government.   I know many people who are the same problem I am;  how do we live on the money we get from the government it’s hardly eat for anyone to live on, especially if you have a home or just starting to live independently and having a few pay mouthy payments you cannot make it.  So coming up with others to make everything work is hard to where we have to make do.    All through its helps us, it’s all makes us not trying to better ourselves.   Not to want to be able to be independent, get a job or have a life.   The government wants to help the disabled people but I would like to see something that would let us want to get a normal life.

Are you disabled and wanting to work or be independent?  Do you need the services for the government?  You want to have a full time job to be able to have a home just as everyone else.   But you can’t; because if you have a job earning some extra money,  the government will take away the services  you need such as home care.  For someone like me who needs aids daily and other services I want to get a job but I can’t!  It can be announcing because I know I have to have help from the government but I also want to do more with my life than just hanging around.   I think that there should be a way to have some kind of job but still get what you need.  If you are in the same boat I am; what do you think?

Having being born with CP, I think having a disability is not a big deal I am still able to do everything I want to.   But there have been times when I am out with family or friends and I can’t get in places,  lucky I have amazing people who find a way to get me in!   Sometimes it’s not that easy!   The disability community have the ADA to a lot of public places they should be accessible and mostly they are.   There some places that aren’t, especially older buildings and some state buildings are not accessible nor many sidewalks;  they may have a ramp but then you find a light post really where some of who uses a wheelchair would be able to get on to the sidewalk I have seen it many times.  The ADA does help and it has given the disability community a lot; though as far as accessibility it would always more to work on.

I have cerebral palsy, so reading this letter someone wrote thanking their CP was pretty awesome! I would do the same thing; yes my cp can be hard and annoying most of the time but I know that I would be different if I didn’t have a disability.   Yes I have to work harder than most, I need help with everything.  I know I can’t get a normal job that annoyed me, its more because I could lose the help I need daily,  I have work harder at something simple as getting people to see me without my cp.  But am I happy with what I have who I am and all those quotations; yes I am!

https://themighty.com/2017/07/open-letter-to-my-cerebral-palsy/

Having a physical disability can be hard sometimes but you can explain to people how to help you or you know what works for you.  A disability that can be seen you are able to teach others and also bring awareness to it.  But a mental illness is not that easy to explain.  Here is a reason why I think it’s harder to tell others about mental if you have depression or some kind of mental illness;  I think people think it’s all in someone’s head that you have depression but as I read more about mental health is not just in their hands.   Sometimes it is something that they can’t control or even something from their past that has left hurt that they don’t think they feel they can let go of.  Or maybe that is just a disability.   This article about someone who is sacred to tell her story just because others don’t see that having a mental illness is a disability.  https://themighty.com/2017/05/scared-my-mental-illness-makes-me-hard-to-love/.
This is one reason I want to help people who feel like they can’t talk about mental health.

Kinds of Cerebral palsy.

https://themighty.com/2017/03/things-everyone-should-know-about-cerebral-palsy/?utm_source=Facebook&utm_medium=CerebralPalsy_Page.

I think this article is awesome,  it gives decisions of all the difference kinds of CP because there are so many ways that CP, its not one type but even knowing what kind someone has it can every from person to person.   I have Ataxia is the least common form of cerebral palsy. Ataxia means ‘without order’ or ‘incoordination’.  It is not a common type which can be hard sometimes;  when I need to tell people about it,  or I just say I have the crazy kind!

‘Ataxia is the least common form of cerebral palsy. Ataxia means ‘without order’ or ‘incoordination’ Ataxic movements are characterised by clumsiness, imprecision, or instability. Movements are not smooth and may appear disorganised or jerky. The incoordination seen with ataxia occurs when a person attempts to perform voluntary movements such as walking or picking up objects. Ataxia causes an interruption of muscle control in the arms and legs, resulting in a lack of balance and coordination.’

I haven’t done this in a while;  what I’m thankful for.   I just got home from an amazing week at camp.  I love this camp its like I don’t have a disability.  That camp is made for the disabled so everything I could do or they would find a way for me.  I did things I don’t think I can do like walk through a ropes course,  or rock climb!  It just feels awesome going to a place where you’re not looked at as different,  when in everyday life that is what you get more than I can say.   I move a lot I can’t talk readily or people don’t understand what me, but there is not a big deal!

My cp hurts/hard day

My CP can be so tight and in doing excise or anything else can be so hard, but I keep going yesterday was an tighter day.   I had to go to project walk and nominally it helps.   But not yesterday,  I have so much that I’m excited for that it makes me tighter then normal.  CP is not the same every day well least mine isn’t,  that is what is the hard part of my cerebral palsy.  But it’s what I have to deal with to keep moving forward, all that to say there are many people who have it hard, and may not think they could be supported but you are; your journey may be hard but you are not alone!   Don’t hide you!

”No one wants to be discriminated against. No matter who you are, you have the same rights to life and equality as everyone else. This is the purpose behind the 2010 ADA Standards for Accessible Design. These standards as issued by the Department of Justice and the Department of Transportation ensure that Americans with disabilities have the same rights of access to public buildings as every other citizen of the United States.”(http://accessadvocates.com/why-the-2010-ada-standards-for-accessible-design-mean-equal-rights-for-you.)

Think about this;  as if someone discriminated against when there is nothing wrong with you,  you are able to do everything but someone doesn’t like something about you.   That what someone with a disability feels like what we get discriminated just because we are different.   We are all different the only difference between someone with a special need and the able-bodied is,  year not see their disability.

Disabled parking

what goes through your mind when you’re out and you see a parking spot for wheelchairs?  Do you take it?   Thinking you just have to run in for quick minute no one will notice.   Like the person with a wheelchair won’t need in the time you are in the store; you may have that thought that wheelchair uses can wait or just park somewhere else.   But the thing is when you have an accession van, or just a wheelchair; you are going to need the extra room to get out.those parking spots have a reason for being wider; even helping someone to get out of a car you are going to need the room.   It’s not there for anyone or just for a quick stop!
Before I got my accessible van,  I would need to have someone put my chair together than get me out and in the chair, my mom and I had a car park too close to the car, my mom thought we had enough room to get me in but as we tried; mom and I ended up on the ground between the two cars because there wasn’t enough room for me to get in.

This article tells more about why the disabled parking shouldn’t be a just quick run in opposition.

http://kdvr.com/sponsored/?prx_t=tMcCAV5YPAMscFA&prx_ro=s

 

 

Going for a walk, when you are disabled

Last Thursday it was a great sunny day outside so I decided to go for a walk with my dog Simba.  I had just got a new phone holder for my wheelchair,  I wasn’t used to it yet and it didn’t have the sticky stuff that I use on everything I use because of my movements it helps if stuff does not move.   But my mom and I thought with the kind of holder it is I would be fine.   So I started on my walk with Simba, I went a longer way because I was enjoying being outside;  my foot pad had dropped off my chair I was trying to pick it up myself because there was not one around and when trying I dropped my phone.   I saw a car drive by I got them to stop and they came over to help,  now I was moving a lot and they tried to hand me my phone but I couldn’t hold on to it,  so they thought I couldn’t have a phone or be out on my own.  So they started texting the first person in my message box I had no idea that they had texted my friend who is in an another state, they got her freaked out that something happened to me.   Then they called my mom and said they found me that was all oh and where to come,  the other lady called 911!  While I am saying I could walk home (I do this all the time) they had my phone which has a talker app I use if I need to have people understand what I am saying but I couldn’t,  they could understand me some;  but when I could go on.  They said they knew I could get home but they would not let me go like a was a chance that couldn’t be on their own,  so just as I could see my mom walking towards me the fire truck came I started crying thinking they would take me away,  like my mom couldn’t take care of me.   Don’t know why I thought that but I did!  So the firemen saw my mom and I and that I wasn’t hurt,  he said that the ladies made this bigger than it needed to be.

I think the didn’t know anything about disabilities and I was moving so much,  thinking that I was hurt but if they knew what I was saying they shouldn’t have called the firefighters just asked me what I needed.

Disabled employment; not easy

I have a disability,  I need to be on med-aid to help pay for the help I need daily and my wheelchair and others things I need.   But I also want to have a job I am not one to stay home and think that became I’m disabled I don’t need to work.   When you are on mad-aid you can’t work a lot or you’ll stop getting the benefits.  So how could you work when you know the things that help you live a normal life might not be there if you get a job and start bringing in money;  I think that they (med-aid) should help us want to work;  shouldn’t let think we can’t work.   Yes if we can pay for all we need out of our money than it would be different.   But when people with disabilities have the thought that you shouldn’t work because of losing benefits,  you wouldn’t want to get a job but if your benefit group were helping you to get to where you don’t need them it would better than making us more disabled.

Ever notice how what you have a difference or a disability, the looks you get or people think of you as an hero just because you have a disability?   I get it a lot.   Its not right;  just because we have a disability doesn’t mean we are heroic.   We were born with it or something happened we have a disability.  To be a hero is more than just being disabled or because we are different,  a hero is someone who always puts others first!

Good information about the disabled community

Knowing what I know about the ADA ( Americans with disabilities act), this article about what some states are doing to better life for so many people with disabilities I hope that Colorado and the whole world could think like this.  The ADA is there to help people with disabilities have a normal life but like with anything the ADA could use an update.   There are a few states that are the disabled community are working in changing some laws in the ADA to better fit the community who needs it.

-http://cdrnys.org/blog/press-releases/analysis-of-the-2017-2018-executive-budget-proposals-that-impact-people-with-disabilities/

being disabled; what is the hardest part?

You have a difference you are disabled.You want to have a normal life, you have worked hard to go to school to get a job which you can do. Your disability is what people see before anything else, what you can’t do.  Your disability should not be what they think about when they are interviewing you or anyone that is knowledge about the work, but word disabled has been looked at badly that people don’t think, that being disabled could just mean different;  we are all different from each other! Yes I know it just one way to look at it, but it makes since just read it more closely you will understand; or maybe when you are disabled it seems right. If we can see your disability or not no one is normal or the same so why  do we think that having a disability that you can see is a big deal because it’s not; people who are disabled are just like you only thing is,  you can see our difference.

disabled children

when I was ms. wheelchair 2010, my  goal was to help teach families of children with disabilities, that him or her can do more than you think don’t limited them.   Schools and dr’s may tell you their kind of disability but  you should  see how your child learns and behaves before knowing that the child needs special education, see the child before the disability.  This article looks at some things that may help in that;


5 ways to improve the lives of children with a disability
by Chris Lenart | Dec 29, 2015 | Improving kids’ lives | 0 comments
Children with a disability have to be in a supported and have the same opportunities that the other kids have. For this discussion, I am going to focus on the child with a disability who is high functioning in terms of education. What I am going to say does not apply to all kids with disabilities. I am going to give you five points to think about today.
1. Allow the kids with disabilities to learn by making mistakes.
What I mean by this is that sometimes parents try to protect their child with a disability so that they don’t allow the child to fail at something. I feel that the parents want to protect them altogether because they are a person with a disability. My point is this – what will happen to the person with a disability if their parents are not around? Will they know what to do when they have to make a critical decision. When I moved into my condo almost six years ago, my dad and I had fights about how I was handling my money. Yes, I didn’t manage my money wisely, but I needed to learn the hard way. Everyone has to go through the hard times and learn from their mistakes.
2. The kids had not been taught something the right way so they don’t have learn the right way when they are on their own.
What I mean by this is that I have heard from people who have a disability that they didn’t learn math or reading properly in school. I think that this is a huge disgrace because it was not their fault from not learning at school. Basic math and reading are essential thing that you need every day. Sometimes I feel sorry for the person, but after the person says that they were cheated on their own education over and over, it gets tiring. We are living the best era of humanity because we have the internet to learn from.
3. The person with a disability can be more independent with proper technologies.
I see people with disabilities in a manual wheelchair and having a person pushes them around. If that person was me, I would go nuts. Where is the independence with having a person pushing you all around. Beside that, I know people who have a disability, can not work a computer by themselves. This blows my mind because they want to be independent. As kids who have a disability grow up, technology will get better. So why not help them learn to use technology for their benefit now. Google is working on a car that drives by itself. Technology is unlimited so we have so much to look forward in the next ten years.
4. Kids who have a disability have to have all of the opportunities that the other kids have.
In the school system and community, there are so many activities that kids have. But they don’t allow kids who have a disability to join. So there are activities that are set up for kids who have a disability. This is good to a point, but the kids with disabilities need to be with kids around their neighborhood. Integrating all kids together is the most important thing to do. The kids are most likely in the same school. If they are out of the school environment, they can socialize more. The friendship will grow at school and in the neighborhood.
5. To be a family, everyone has chores including the child who has a disability.
This might sound harsh to a point, but let me explain. Say the family has three kids and two have a weekly chore to do. Will the kid who has a disability learn responsibility? Maybe. Now if the child who has a disability has a chore, they will learn responsibility. Let’s say the child does not have the ability of doing a chore by themselves. Maybe allow the kid to work with their sister or brother. This way they learn responsibility that I feel many people who have disabilities are lacking these days. I hope that I have given you some food for thought. I don’t want to sound too harsh but after living on my own and seeing how other people with disabilities act, I have gotten to a point where I don’t like what I see.

think about this;what would you do if you couldn’t walk or if you find out that your child would not be able to walk?  I am sure that thought is not one you want to think about.   But just image what it would be like to have everything you were able to do on your own; now you need help with everything even eating, for me it’s my life but I can image for anybody who had the freedom to do anything   but now it’s different.  You began to understand what a wheelchair can mean to someone who only knows that life.  A wheelchair is more than a thing; it becomes a part of you,  especially nowadays with how much a wheelchair can help us do, you may see that a wheelchair can make a big differences in someone’s life.

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ever had one of those weeks where everything goes wrong?  That was my week about two weeks, it seemed like everything, that makes my little easier was not working it was hard,  I couldn’t anything!   I was getting annoyed with my  disability and realizing that I may not get a new intellikeys  keyboard which is how I can do everything that I love working, writing/helping others it was all coming down.  I still don’t have a new keyboard,  but I need to keep busy I need to feel like I can do stuff .  When you have a disability that there are only a few things that you can do without  help, it’s important to find a way to be as independent. Especially  if you need help with everything else.  I don’t like when I  cant do anything.  I try to see the good in each day but the last two weeks I couldn’t.  I was feeling down and it wasn’t like me to want to give up  trying to work or  see if something good could happen that is not me!   I am back.    I’m still trying to get a new keyboard and  honestly it doesn’t look like it will be  an easy fix  but I won’t give up.*

Being disabled to me is apart of what makes me who I am.   I was born with CP, so I know there are going to be people who can’t see passed it, I understand that.    But when I go out and someone who see me; than acts like I am amazing just because I have cerebral palsy before getting to know me,  it’s a little crazy!   Just because my life is a little different or harder doesn’t mean I am ”a hero”   yes it can be  harder than someone doesn’t have a disability but get to know me someone who has a disability,  before you think they are amazing.  For me it’s not a big deal its part of my life,  I can imagine for someone who could walk and now can’t it may be a while before they are comfortable with their new life.   Being different or disabled can be hard at times but who’s life is easy all the time!   My disability doesn’t mean I am amazing just because I am different, get to know who I am being you think you know that I’m or anyone who is disabled.

Technology has helped the disability community.

I have just started using a smart phone with the help from my power chair,  with special buttons and my joystick I am finally able to use something I thought I would never use!   My movements are so hard/crazy that I couldn’t use it;  I would press all the buttons, everything I don’t want to press.   Now because of the new technology a phone can be use by a power wheelchair,  it helps someone who has a disability use something that without that we could not.   I know for me having a smart phone has been a great thing to help me become more independent, I have a harder time being understood,  now I can use the note book on the phone to help people understand me.  I know technology has helped everyone.   But for the disability community technology has his our lifes a little easier.

Ask before helping

It is a habit for everybody, if you see somebody who needs help you want to help them. But to someone who is disabled it might not come across the way you would think.  As a person who needs help for everything; I can tell you that sometimes I will not take the help not because I don’t appreciate the offer.  But I would like to try before you think I need help.  Yes it may seem like it would be easier to just help a differently abled  person but maybe they would like to try to be more independent and find a way to do it. For some of us who use power wheelchairs to get around;  sometimes we will meet people who do not know that we are the only ones who can move it easily and if we need help we will ask, we can do everything just in a different way.   Having a disability comes needing help with daily life things that would be easy to someone who is  ”abled body”.  It doesn’t mean that we can’t do things if someone is differently abled it just means we have to do things in a different way.   So to you who are abled body the next time you see a person who is differently ask if you can help them before you do.

Cp

 

There are so many different kinds of disabilities some we don’t even think of as a disability. Look up the word disability, ”Disability is an impairment that may be physical, cognitive, intellectual, mental, sensory, developmental, or some combination of these that results in restrictions on an individual’s ability to participate in what is considered “normal” in their everyday society.” But is anyone exactly the same? No,we all have a difference and that to me is a disability. But people who are so called normal they aren’t, being normal to me means we would all be exactly the same but we are different from each other which is amazing.  So think about this; why when people see someone who has a visible difference why are they named disabled why isn’t everyone? I think it’s because people who are “disabled” need more help daily.   I agree that does make sense but don’t you sometimes need a little more help?  I have Cerebral palsy, Athetoid, Main article: Athetoid cerebral palsy Athetoid cerebral palsy or dyskinetic cerebral palsy is mixed muscle tone — hypertonia and hypotonia mixed with involuntary motions. People with dyskinetic CP have trouble holding themselves in an upright, steady position for sitting or walking, and often show involuntary motions. For some people with dyskinetic CP, it takes a lot of work and concentration to get their hand to a certain spot (like scratching their nose or reaching for a cup). Because of their mixed tone and trouble keeping a position, they may not be able to hold onto objects, especially small ones requiring fine motor control (such as a toothbrush or pencil). About 10% of individuals with CP are classified as dyskinetic CP but some have mixed forms with spasticity and dyskinesia. The damage occurs to the extrapyramidal motor system and/or pyramidal tract and to the basal ganglia. In newborn infants, high bilirubin levels in the blood, if left untreated, can lead to brain damage in the basal ganglia (kernicterus), which can lead to dyskinetic cerebral palsy.[citation needed.)”‘   This is one thing which makes me different.   What makes you different from anyone else?

This is a great article written by an close friend who knows a lot about the disabled community,  she has  a great view in this topic; education for the disabled children. I agree with her,  as someone who has been through two schools systems one of them was not as best into the disabled as what could the child use to work more in.   I don’t think that he should have been taken out of school , I think the school with his mind could have worked together to create a way that would help the rest of the school and the community to have a better understanding of a person with a disability. I know this story is about one child but I think about schools and communities should try to be more including of those with disabilities.

-http://www.amchp.org/AboutAMCHP/Newsletters/Pulse/JulyAugust2016/Pages/From-the-President.aspx.

 

This is something I totally agree with.

Because many of them have achieved what we couldn’t, even when we have all the means, period. Hello everyone! World is so full of different kinds of people. Long legs, short hair, warm complexion, skinny frame, large eyes, small mouth, nose that does not look straight (I do not know the exact word. Please, enlighten […]

via Disabled vs Specially-Able — Eloraquence

  • I have a disability that it’s very easily seen; some disabilities are invisible,  we all have some kind of disabled .  But when someone who has a disability goes out and tries  to have a life not letting our disability get in the way to the having a normal life.  When you think about us all having a disability doesn’t it make you wonder why if you are different you get looked at? The more we get to know somebody the more we see how alike we are.   When someone who hasn’t been around people with disabilities, they don’t understand/know that just because some of has a disability, but if the disabled community was not seen as different by schools,  governments groups and others;  maybe disabled people wouldn’t have to always explain their differences.   Thinking about it in this way wouldn’t you want to change the way differences are thought of?  People who have disability can do the same things as an abled person, it may be in a different way but people with disabilities aren’t that different from the “normal” person.   The government has placed people with disabilities in a group that people think they need to be shameful,  very helpful or the opposite;  not knowing what is a disability and not knowing how to communicate with someone who has a disability.  We can start by not dividing children in schools and teach them that disability or not we are all equal!

https://thinkprogress.org/disabled-voters-feeling-ignored-by-candidates-take-election-into-own-hands-ce0a495c5ec2#.xuzs80d0o. This year’s candidates don’t realize that by ignoring the disability community and the issues like,  medical coverage or the many issues that not only affect those who are disabled but everyone.  People who aren’t disabled follow the two candidates may think that it’s fine to ignore the people who are different; when the candidates should be understanding of the disabled community,  rather than ignoring them because the candidates might not know much about disabled people.   Some of the issues they don’t speak on are Unemployment. Incarceration rates. Access to education. Medicare coverage gaps. Reproductive rights, these are important issues which everyone at some point in life has needed something in one of these areas.  There is a lot to think about; as a disabled person voting.   

I can’t walk but it doesn’t mean I can’t think or that I have a learning disability.   I am physically disabled!   Sometimes when I am out with family, friends and or on my own,  I will sometimes get a person who will act as if I can’t think or they will talk to me in  ”baby talk”, if I am with someone they will talk to them about me!  I understand that some people are not comfortable with people who have a disability, but why?   When we all have some kind of difference we all have some kind of disability which is what makes us unique.   So why is it so weird that I can’t walk and I talk funny,  there is nothing wrong with my mind!   If you have questions about my disability you can ask me not the person I’m with. I have CP, so what!   There is so much more about me than just my disability!

https://scontent.fsnc1-1.fna.fbcdn.net/v/t1.0-0/p526x296/14054027_894614080643398_7961637065884496604_n.png?oh=c7cd844feb0ffc555ddde2a64639c703&oe=5811957A

To all my friends in chairs; or anyone who agrees with me that no matter if you are so called “normal” you still have some kind of difference which I would call it a disability. First do you think that everyone has a disability? If we were all the same the word we wouldn’t have any needs or differences. 2ed. What would you do to help someone who hasn’t had any experience with a person who has a visible disability; know that we are all the same?

Ms. Wheelchair American Iowa 2015

As I have said before,  I am Ms. Wheelchair Colorado  2010.  I thought it would over in one year,   I only one year to be Ms. Wheelchair Colorado  2010; I could not believe that the honor would last a lifetime!   I am now running the Ms. Wheelchair Colorado  Coordinator and it is the best!   I love going to nationals every year and see some old friends.  Also I came back inspired!  I love this organization so much,  everyone in Ms. Wheelchair America is in a wheelchair or they understand what it’s like to have a disability.   This year the national pageant was last weekend,  it was where my friend from Ms. Wheelchair Iowa 2010, so I got to stay with her and family which was great.   The Ms. Wheelchair American pageant was amazing. 

I am Ms. Wheelchair Colorado 2010

I would like to tell you my story. At six months old I was diagnosed with Cerebral Palsy. The doctor informed my parents about a special “home” that could take care of me. I probably would never recognize anybody, talk or even hold my head… they were to concentrate on my two teenage brothers. But my family did not follow his advice. They worked with me, fussed over my simple achievements and encouraged me never to give up. My brothers showed me off with pride…
Yes, there are many things that I will never be able to do. My speech is not always clear, my arms tend to have a mind of their own and yes, Life can be hard but if you give it your best you will be surprised with what you may achieve. Everybody is different! Even people without disabilities can’t do everything. So, I look for what I am good at and make the best of it.
I guess it is easier to just use the disability as an excuse and not to try to achieve. But that is not how to LIVE LIFE, that is to just exist. I don’t expect to be treated differently. Actually I DON’T WANT to be treated differently. I had to fight for the right to be allowed to attend regular classes. Why? I do not think with my legs! But when I went on stage to get my “real” high school diploma all those months of struggle became history.
People with disabilities deserve to be allowed to achieve their best like anybody else, whatever that might be. But… like everybody else they must earn rights and respect! Do not give up. Look for the rainbow after every storm! Make the best of your LIFE!Scan0003