Category Archives: Ms. Wheelchair organization. Colorado

think about this;what would you do if you couldn’t walk or if you find out that your child would not be able to walk?  I am sure that thought is not one you want to think about.   But just image what it would be like to have everything you were able to do on your own; now you need help with everything even eating, for me it’s my life but I can image for anybody who had the freedom to do anything   but now it’s different.  You began to understand what a wheelchair can mean to someone who only knows that life.  A wheelchair is more than a thing; it becomes a part of you,  especially nowadays with how much a wheelchair can help us do, you may see that a wheelchair can make a big differences in someone’s life.

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ever had one of those weeks where everything goes wrong?  That was my week about two weeks, it seemed like everything, that makes my little easier was not working it was hard,  I couldn’t anything!   I was getting annoyed with my  disability and realizing that I may not get a new intellikeys  keyboard which is how I can do everything that I love working, writing/helping others it was all coming down.  I still don’t have a new keyboard,  but I need to keep busy I need to feel like I can do stuff .  When you have a disability that there are only a few things that you can do without  help, it’s important to find a way to be as independent. Especially  if you need help with everything else.  I don’t like when I  cant do anything.  I try to see the good in each day but the last two weeks I couldn’t.  I was feeling down and it wasn’t like me to want to give up  trying to work or  see if something good could happen that is not me!   I am back.    I’m still trying to get a new keyboard and  honestly it doesn’t look like it will be  an easy fix  but I won’t give up.*

Being disabled to me is apart of what makes me who I am.   I was born with CP, so I know there are going to be people who can’t see passed it, I understand that.    But when I go out and someone who see me; than acts like I am amazing just because I have cerebral palsy before getting to know me,  it’s a little crazy!   Just because my life is a little different or harder doesn’t mean I am ”a hero”   yes it can be  harder than someone doesn’t have a disability but get to know me someone who has a disability,  before you think they are amazing.  For me it’s not a big deal its part of my life,  I can imagine for someone who could walk and now can’t it may be a while before they are comfortable with their new life.   Being different or disabled can be hard at times but who’s life is easy all the time!   My disability doesn’t mean I am amazing just because I am different, get to know who I am being you think you know that I’m or anyone who is disabled.

Technology has helped the disability community.

I have just started using a smart phone with the help from my power chair,  with special buttons and my joystick I am finally able to use something I thought I would never use!   My movements are so hard/crazy that I couldn’t use it;  I would press all the buttons, everything I don’t want to press.   Now because of the new technology a phone can be use by a power wheelchair,  it helps someone who has a disability use something that without that we could not.   I know for me having a smart phone has been a great thing to help me become more independent, I have a harder time being understood,  now I can use the note book on the phone to help people understand me.  I know technology has helped everyone.   But for the disability community technology has his our lifes a little easier.

Ask before helping

It is a habit for everybody, if you see somebody who needs help you want to help them. But to someone who is disabled it might not come across the way you would think.  As a person who needs help for everything; I can tell you that sometimes I will not take the help not because I don’t appreciate the offer.  But I would like to try before you think I need help.  Yes it may seem like it would be easier to just help a differently abled  person but maybe they would like to try to be more independent and find a way to do it. For some of us who use power wheelchairs to get around;  sometimes we will meet people who do not know that we are the only ones who can move it easily and if we need help we will ask, we can do everything just in a different way.   Having a disability comes needing help with daily life things that would be easy to someone who is  ”abled body”.  It doesn’t mean that we can’t do things if someone is differently abled it just means we have to do things in a different way.   So to you who are abled body the next time you see a person who is differently ask if you can help them before you do.

Information about CP

Here is some information about CP.  I will post about all different kind of disabilities.   I have Cp, so most stories about CP,because it effects my life and I would like to bring more awareness and to understanding to this disability “differences”, as well as many others. -http://www.curehealth.info/11-important-things-everyone-know-cerebral-palsy/

 

Cp

 

There are so many different kinds of disabilities some we don’t even think of as a disability. Look up the word disability, ”Disability is an impairment that may be physical, cognitive, intellectual, mental, sensory, developmental, or some combination of these that results in restrictions on an individual’s ability to participate in what is considered “normal” in their everyday society.” But is anyone exactly the same? No,we all have a difference and that to me is a disability. But people who are so called normal they aren’t, being normal to me means we would all be exactly the same but we are different from each other which is amazing.  So think about this; why when people see someone who has a visible difference why are they named disabled why isn’t everyone? I think it’s because people who are “disabled” need more help daily.   I agree that does make sense but don’t you sometimes need a little more help?  I have Cerebral palsy, Athetoid, Main article: Athetoid cerebral palsy Athetoid cerebral palsy or dyskinetic cerebral palsy is mixed muscle tone — hypertonia and hypotonia mixed with involuntary motions. People with dyskinetic CP have trouble holding themselves in an upright, steady position for sitting or walking, and often show involuntary motions. For some people with dyskinetic CP, it takes a lot of work and concentration to get their hand to a certain spot (like scratching their nose or reaching for a cup). Because of their mixed tone and trouble keeping a position, they may not be able to hold onto objects, especially small ones requiring fine motor control (such as a toothbrush or pencil). About 10% of individuals with CP are classified as dyskinetic CP but some have mixed forms with spasticity and dyskinesia. The damage occurs to the extrapyramidal motor system and/or pyramidal tract and to the basal ganglia. In newborn infants, high bilirubin levels in the blood, if left untreated, can lead to brain damage in the basal ganglia (kernicterus), which can lead to dyskinetic cerebral palsy.[citation needed.)”‘   This is one thing which makes me different.   What makes you different from anyone else?

This is a great article written by an close friend who knows a lot about the disabled community,  she has  a great view in this topic; education for the disabled children. I agree with her,  as someone who has been through two schools systems one of them was not as best into the disabled as what could the child use to work more in.   I don’t think that he should have been taken out of school , I think the school with his mind could have worked together to create a way that would help the rest of the school and the community to have a better understanding of a person with a disability. I know this story is about one child but I think about schools and communities should try to be more including of those with disabilities.

-http://www.amchp.org/AboutAMCHP/Newsletters/Pulse/JulyAugust2016/Pages/From-the-President.aspx.

 

This is something I totally agree with.

Because many of them have achieved what we couldn’t, even when we have all the means, period. Hello everyone! World is so full of different kinds of people. Long legs, short hair, warm complexion, skinny frame, large eyes, small mouth, nose that does not look straight (I do not know the exact word. Please, enlighten […]

via Disabled vs Specially-Able — Eloraquence

  • I have a disability that it’s very easily seen; some disabilities are invisible,  we all have some kind of disabled .  But when someone who has a disability goes out and tries  to have a life not letting our disability get in the way to the having a normal life.  When you think about us all having a disability doesn’t it make you wonder why if you are different you get looked at? The more we get to know somebody the more we see how alike we are.   When someone who hasn’t been around people with disabilities, they don’t understand/know that just because some of has a disability, but if the disabled community was not seen as different by schools,  governments groups and others;  maybe disabled people wouldn’t have to always explain their differences.   Thinking about it in this way wouldn’t you want to change the way differences are thought of?  People who have disability can do the same things as an abled person, it may be in a different way but people with disabilities aren’t that different from the “normal” person.   The government has placed people with disabilities in a group that people think they need to be shameful,  very helpful or the opposite;  not knowing what is a disability and not knowing how to communicate with someone who has a disability.  We can start by not dividing children in schools and teach them that disability or not we are all equal!

https://thinkprogress.org/disabled-voters-feeling-ignored-by-candidates-take-election-into-own-hands-ce0a495c5ec2#.xuzs80d0o. This year’s candidates don’t realize that by ignoring the disability community and the issues like,  medical coverage or the many issues that not only affect those who are disabled but everyone.  People who aren’t disabled follow the two candidates may think that it’s fine to ignore the people who are different; when the candidates should be understanding of the disabled community,  rather than ignoring them because the candidates might not know much about disabled people.   Some of the issues they don’t speak on are Unemployment. Incarceration rates. Access to education. Medicare coverage gaps. Reproductive rights, these are important issues which everyone at some point in life has needed something in one of these areas.  There is a lot to think about; as a disabled person voting.   

I can’t walk but it doesn’t mean I can’t think or that I have a learning disability.   I am physically disabled!   Sometimes when I am out with family, friends and or on my own,  I will sometimes get a person who will act as if I can’t think or they will talk to me in  ”baby talk”, if I am with someone they will talk to them about me!  I understand that some people are not comfortable with people who have a disability, but why?   When we all have some kind of difference we all have some kind of disability which is what makes us unique.   So why is it so weird that I can’t walk and I talk funny,  there is nothing wrong with my mind!   If you have questions about my disability you can ask me not the person I’m with. I have CP, so what!   There is so much more about me than just my disability!

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To all my friends in chairs; or anyone who agrees with me that no matter if you are so called “normal” you still have some kind of difference which I would call it a disability. First do you think that everyone has a disability? If we were all the same the word we wouldn’t have any needs or differences. 2ed. What would you do to help someone who hasn’t had any experience with a person who has a visible disability; know that we are all the same?

Ms. Wheelchair American Iowa 2015

As I have said before,  I am Ms. Wheelchair Colorado  2010.  I thought it would over in one year,   I only one year to be Ms. Wheelchair Colorado  2010; I could not believe that the honor would last a lifetime!   I am now running the Ms. Wheelchair Colorado  Coordinator and it is the best!   I love going to nationals every year and see some old friends.  Also I came back inspired!  I love this organization so much,  everyone in Ms. Wheelchair America is in a wheelchair or they understand what it’s like to have a disability.   This year the national pageant was last weekend,  it was where my friend from Ms. Wheelchair Iowa 2010, so I got to stay with her and family which was great.   The Ms. Wheelchair American pageant was amazing. 

I am Ms. Wheelchair Colorado 2010

I would like to tell you my story. At six months old I was diagnosed with Cerebral Palsy. The doctor informed my parents about a special “home” that could take care of me. I probably would never recognize anybody, talk or even hold my head… they were to concentrate on my two teenage brothers. But my family did not follow his advice. They worked with me, fussed over my simple achievements and encouraged me never to give up. My brothers showed me off with pride…
Yes, there are many things that I will never be able to do. My speech is not always clear, my arms tend to have a mind of their own and yes, Life can be hard but if you give it your best you will be surprised with what you may achieve. Everybody is different! Even people without disabilities can’t do everything. So, I look for what I am good at and make the best of it.
I guess it is easier to just use the disability as an excuse and not to try to achieve. But that is not how to LIVE LIFE, that is to just exist. I don’t expect to be treated differently. Actually I DON’T WANT to be treated differently. I had to fight for the right to be allowed to attend regular classes. Why? I do not think with my legs! But when I went on stage to get my “real” high school diploma all those months of struggle became history.
People with disabilities deserve to be allowed to achieve their best like anybody else, whatever that might be. But… like everybody else they must earn rights and respect! Do not give up. Look for the rainbow after every storm! Make the best of your LIFE!Scan0003