Category Archives: Living with a disability

We all have hopes and dreams.

We are going to be different from each other

Through we are the same.

But you don’t want to talk me because I have a difference!

We are not that different from each other!

How can I help people with depression you may ask, I am a happy person! I am, but I also know what it’s like to be different or have people not understand you. Depressed can be hard to handle at times, especially if you are alone and people tran you away because of it! Even though it is not something you can help, like my cp there are stuff that you can’t help. The feeling of being lonely and maybe it’s harder because your depression can make it harder time telling others what you are feeling. Not being able to talk to someone could make depression wrost on you. I want to help people who feel lonely.

Love!

Love can be hard sometimes but it’s worth it! It is the most important thing we can give maybe even the one thing that could save someone’s life! Love helps depression you might be asking? Yes it does help! Just knowing that you have someone who wants you in their life could mean the world to someone when they are going through depression and wanting to end their own life. Just LOVE!

Today is suicidal prevention day,  because of what I want to I think it’s should be written about.   Depression anxiety is real and in my view it is seen as something we can just look over as if somebody just made up that they are depressed.  Its not;  the way I understand it,  it is as if your mind takes over your thoughts and feelings and you can’t help your feelings when you are depressed.  I am a happy person so me writing about this is kind of weird,   but first a few of my dearest friends go through depression and anxiety on a daily bread and I know that people out there are very understanding which makes you want to hide it,  but what is most needed is to know you are loved!     This is what I am working on my blog facebook page/group to be about.   Less suicides if they know that they are loved,  is my own views on this but maybe this is more needed to help.  But that is how I want to make a difference.

this month

Having a difference that everybody can see I think can be a little easier, than the differences you cannot see.  Having a disability all my life,  I have learned how to explain to others what my disability is and if they are open to differences I have a new friend.  But that is not always the case because people are afraid of something new, yes I have a wheelchair I don’t talk well but I can get people to get comfortable with my disability.   So if you have a mental illness I think it’s harder for others to understand what you are going through.  This month is mental illness awareness mouth,  each day there is someone who has to hide who they are just because others don’t understand how mental illness can just take over the body and you don’t can’t get out of it,  it’s not you.   People who have mental illness might just need someone to understand them just be a friend.   Is not something we can’t help we can.   If we take the time to understand how mental illness works.

So what

Its starting to get cold out, what do you like do when weather changes?  The days it’s too cold to get out of the house,  your comfort zone;  it’s not just the weather that go through changes,  we do too.   We try to keep it hidden, because of everything from others would say to pick on us, even though it is not our doing,  difference or illness is not something we can control but people don’t understand differences even if we are all different.  They don’t understand your life may be your life can be because of an bad experience that has been hard to deal with, or maybe you may have an illness, or a disability, that others don’t get because it’s new to them.   Growing up with CP and now trying to live as normal as I can but I still get the look like I’m not to do something just because I use a wheelchair.   What is the big deal I don’t walk, I used to let others thoughts get to me,  but now I know where I taking my life and what the people who are in my world think about me and is what helps me when others are trying to put me down.   Maybe it would help you.

show them

This morning I was at an event for the disability community, thinking that I could do some networking and meet new people; it didn’t end up that way, it felt as if people are afraid of differences even though we all have a difference. I think I can make friends easily, but I don’t.   Once people know what disability I have then they start to talk to me; because I move all the time and my speech is not that good,  its hard to meet people. Having a difference in which people can see even before they talk to you can put you down, but you have to show them you’re more than your difference!

lonely

Depression can be lonely. Its hard to know how much to help; or not to say the wrong thing. These thoughts we all, even me and I want to help people who depression not because I know about it;  but I could help being their happiness back or just even just be there when its really needed.   I feel like depression is an illnesses that people ran from, just they don’t understand , don’t think they know what to say.  Here is the way I say it,  its not about knowing what to say but first just be there nothing else could help them more than knowing that someone is always there!   Just knowing that they are loved and someone is there ready to talk or be a friend whom no one else will.

BIA

My week away was amazing and needed too.   I am tired but I loved every moment of it,  as you know having a difference that others can see and then think that you are not capable when you know are, can be hard.   But there at camp it was what can you do.  I had to think of goals each day that I thought I have do; I wanted to walk everybody which I did!  I even did some walking on the ropes course which was hard but fun then I zipped down the best part!  We rafting I loved so much,  I loved everything getting to meet new friends and feeling like I was not disabled and nominal,  I worked hard but had a great week.

pin Mount Evans

I have been in a wheelchair all my life, so something about knew I couldn’t do. Such as getting to the top of a mountain! There are many others that I didn’t think I could get to do, I have done a lot for myself that others didn’t think I could do; but this weekend I’m going to get to be on top of a mountain WHAT? You might be saying me too! Most things I have found a way around it so I can have a normal life. But getting to the mountain what? Really, my friend is a mountain climber and knows that I may not have had a opportunity for something like this, so we have started an organization to get people out who do not get to go on hikes because of their differences or just don’t think they can. This is a huge thing for me and others like me to I will write a blog on the experience next week.

Being in a wheelchair you would think it would be easy to be seen!   It’s not;  I was at the hospital visiting a friend and I realized that another friend of mine worked there,  so we went to see if she was in.   I was rolling down the hall way of the hospital with my father and friend staying to one side so others could pass through thinking that way I won’t ran into anyone.   So I thought, , now I don’t expect people to move out of my way, though my body does not always listen to what I want to do.  But I always try to make others can get by me.     So as we were walking I don’t  think anything about that the other people were gone to close to my wheelchair before moving over to the other side even though I was on the side; my friend saw and said people are just walking like you’re not there.   I get out of two reactions from  others who don’t know me,  first is very helpful;  second is ignoring me because of my disability. Why  is being in a wheelchair such a big thing it is the way I can get around!

Mental illness

Today is mental illness awareness day, depression, suicide and many others disabilities in which nobody can see.  The hardest difference to talk about, there are many different thoughts on this topic; even if you deal with depression it may be different in your life than anyone else.  It is so different for everyone, for some talking about it helps them, others just hide it.   I don’t know very much about mental illness but it’s one topic I want to help.

Good to know.

As you know;  I am working on becoming a online mentor,  I want to help in different topics including disabilities,  depressed and bipolar depression.   I am disabled , people can see my difference and I can explain why I am the way I am but it still hard for people to us my CP.  But the two other differences I want to help in or just be a support in depression and bipolar; you don’t see if someone is dealing with it. I can understand that whoever has either of bipolar or depression;  first it is the easy to tell someone second you feel different and from my experience people don’t see differences even though we all are different!   But if you have a differences you can face loneliness and much more hard things than your difference,  I get it all the time I may not be a doctor,  but I understand what it’s like to a name called just because of something I can’t help.    But back to bipolar;  this is what it is ‘’ What Are the Symptoms of Bipolar Disorder?

In bipolar disorder, the dramatic episodes of high and low moods do not follow a set pattern. Someone may feel the same mood state (depressed or manic) several times before switching to the opposite mood. These episodes can happen over a period of weeks, months, and sometimes even years.How severe it gets differs from person to person and can also change over time, becoming more or less severe. Symptoms of mania (“the highs”):

  • Excessive happiness, hopefulness, and excitement
  • Sudden changes from being joyful to being irritable, angry, and hostile
  • Restlessness
  • Rapid speech and poor concentration
  • Increased energy and less need for sleep
  • Unusually high sex drive
  • Making grand and unrealistic plans
  • Showing poor judgment
  • Drug and alcohol abuse
  • Becoming more impulsive

During depressive periods (“the lows”), a person with bipolar disorder may have:

Here is an over view of bipolar depression, I know I couldn’t fix this or depression, but if we start learning about it, I might be able to help someone with either depression and or bipolar diseases.

I have Cerebral palsy the crazy kind I like to tell people!  I’m always moving and not because I want to, its uncontrollable yeah I make fun of myself half the time!   I am hard to understand, I like to think I don’t give up easily,  its can get hard but I have to keep going because I know I have the best support team batting with me!   I live on my own but I have a roommate and caregivers that came and go through the day.   Like anyone my age I am in the place in my life, I’m still trying to fugue out what I want to do with my life but I know CP  is not keeping me down!   Cp day is March 25th.

Have you ever imagined your life different?  If you are in a wheelchair; you will understand this more.   I am in a wheelchair and need help getting out of the chair; I am on my own half of the day.   Nominally its ok; I can get my work done or just have some time to myself but what happens if I need to go,,,, or if I need to get out of my chair; I cannot!   I could probably find a way but I can’t go P on my own, that is the only thing about being home alone that sucks!   I was talking to a friend about how I could not imagine how if I could walk and just go wherever I wanted to, I could not see myself as an able-body!  I guess because my CP has always been a part of me, it would be weird to think about me walking!   Its just me, not saying that I am just cp but it is the only thing I know.   Having people help me though my day though life!

Having a physical disability but just physical can be hard there is so many thoughts that people who see somebody like me.   I am not saying that any kind of disability is not hard but for me in what I have done and what I see most of the time it’s not easy.  My CP is just physical but others who don’t know me think it’s more,  and that so gets to me every time,  even though I know it’s coming!     Do you feel like that?   I think even if you don’t have a disability you can get that.  So how do you not let it got to you?   Love you are first,  knowing that there are people who need you, who love you for you! Tried to not let them put you down isn’t easy without knowing you have a family and friends who don’t judge you.

Childhood with a difference can be hard on everyone. Not because it’s the child but because there is so much people think they need more than a normal child.   I am saying that some child who are disabled nothing more but every disability is so different in more ways than people think; trying to group all disabled children into the same class doesn’t seem right to me.  I think there could be a other way to see it a child can or needs more help.  Some people who have disabilities could do more than people think. It may be a little different but they can, just learn them and go from there!

What do you think of when you think of disability?  There are several different ideas about what people with disabilities but mostly it’s what you cannot do, its not because they don’t care they just don’t know any different.     Having a wheelchair and getting that look of oww sorry about that you’re in a wheelchair or baby talk like I don’t understand.   Every time I meet someone new, I am still not used to it.  Its me, I can do anything and no I am not a kid just because I don’t walk.  It like I have to walk to think!   I have a lot that I can do just in a different way.   It happens all the time and I want to change that view.   I will!

I just saw a post about breaking the silence towards mental illness and I couldn’t agree with that more!   I don’t deal with depression or mental illness but I know people who have and I want to be a person could may be change the way we think about it; just like I want to do for the disability community.   Because I don’t like the way its looked at.   In a way it is like saying to me; why don’t you walk?  Its not something people can help; maybe something happened that left a bad impact on them, or it just is.  I know there is much more that is a mental illness I’m still learning but this important to me.  I don’t think depression well enough supported; maybe I can’t do much but I will try to.
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Yesterday I wrote about how if you have a disability you are basically can’t get a job.   There’s a lot that could mess up your benefices that the government gives you.  If you’re disability is physical only you can understand that the idea of working is not that early to do not you cannot work but because the help you have to every day could be taken from you.   So we end up creating new ways to have a normal life, or not trying!   I don’t know about you guys, but it seems wrong.   People with disabilities should not feel like they can’t work or own a house because of the government.   I know many people who are the same problem I am;  how do we live on the money we get from the government it’s hardly eat for anyone to live on, especially if you have a home or just starting to live independently and having a few pay mouthy payments you cannot make it.  So coming up with others to make everything work is hard to where we have to make do.    All through its helps us, it’s all makes us not trying to better ourselves.   Not to want to be able to be independent, get a job or have a life.   The government wants to help the disabled people but I would like to see something that would let us want to get a normal life.

Are you disabled and wanting to work or be independent?  Do you need the services for the government?  You want to have a full time job to be able to have a home just as everyone else.   But you can’t; because if you have a job earning some extra money,  the government will take away the services  you need such as home care.  For someone like me who needs aids daily and other services I want to get a job but I can’t!  It can be announcing because I know I have to have help from the government but I also want to do more with my life than just hanging around.   I think that there should be a way to have some kind of job but still get what you need.  If you are in the same boat I am; what do you think?

Having being born with CP, I think having a disability is not a big deal I am still able to do everything I want to.   But there have been times when I am out with family or friends and I can’t get in places,  lucky I have amazing people who find a way to get me in!   Sometimes it’s not that easy!   The disability community have the ADA to a lot of public places they should be accessible and mostly they are.   There some places that aren’t, especially older buildings and some state buildings are not accessible nor many sidewalks;  they may have a ramp but then you find a light post really where some of who uses a wheelchair would be able to get on to the sidewalk I have seen it many times.  The ADA does help and it has given the disability community a lot; though as far as accessibility it would always more to work on.

I have cerebral palsy, so reading this letter someone wrote thanking their CP was pretty awesome! I would do the same thing; yes my cp can be hard and annoying most of the time but I know that I would be different if I didn’t have a disability.   Yes I have to work harder than most, I need help with everything.  I know I can’t get a normal job that annoyed me, its more because I could lose the help I need daily,  I have work harder at something simple as getting people to see me without my cp.  But am I happy with what I have who I am and all those quotations; yes I am!

https://themighty.com/2017/07/open-letter-to-my-cerebral-palsy/

Having a physical disability can be hard sometimes but you can explain to people how to help you or you know what works for you.  A disability that can be seen you are able to teach others and also bring awareness to it.  But a mental illness is not that easy to explain.  Here is a reason why I think it’s harder to tell others about mental if you have depression or some kind of mental illness;  I think people think it’s all in someone’s head that you have depression but as I read more about mental health is not just in their hands.   Sometimes it is something that they can’t control or even something from their past that has left hurt that they don’t think they feel they can let go of.  Or maybe that is just a disability.   This article about someone who is sacred to tell her story just because others don’t see that having a mental illness is a disability.  https://themighty.com/2017/05/scared-my-mental-illness-makes-me-hard-to-love/.
This is one reason I want to help people who feel like they can’t talk about mental health.

I have cerebral palsy so this article I like and agree with the message that having any kind of disability is not something to be afraid of or having others make fun of.  Its a difference that people un-sure of,  but we can teach others about different disabilities and maybe we could change the way having a disappearing is seen.

https://worldcpday.org/people-with-cerebral-palsy-are-justlikeyou/

 

Kinds of Cerebral palsy.

https://themighty.com/2017/03/things-everyone-should-know-about-cerebral-palsy/?utm_source=Facebook&utm_medium=CerebralPalsy_Page.

I think this article is awesome,  it gives decisions of all the difference kinds of CP because there are so many ways that CP, its not one type but even knowing what kind someone has it can every from person to person.   I have Ataxia is the least common form of cerebral palsy. Ataxia means ‘without order’ or ‘incoordination’.  It is not a common type which can be hard sometimes;  when I need to tell people about it,  or I just say I have the crazy kind!

‘Ataxia is the least common form of cerebral palsy. Ataxia means ‘without order’ or ‘incoordination’ Ataxic movements are characterised by clumsiness, imprecision, or instability. Movements are not smooth and may appear disorganised or jerky. The incoordination seen with ataxia occurs when a person attempts to perform voluntary movements such as walking or picking up objects. Ataxia causes an interruption of muscle control in the arms and legs, resulting in a lack of balance and coordination.’

I haven’t done this in a while;  what I’m thankful for.   I just got home from an amazing week at camp.  I love this camp its like I don’t have a disability.  That camp is made for the disabled so everything I could do or they would find a way for me.  I did things I don’t think I can do like walk through a ropes course,  or rock climb!  It just feels awesome going to a place where you’re not looked at as different,  when in everyday life that is what you get more than I can say.   I move a lot I can’t talk readily or people don’t understand what me, but there is not a big deal!

My cp hurts/hard day

My CP can be so tight and in doing excise or anything else can be so hard, but I keep going yesterday was an tighter day.   I had to go to project walk and nominally it helps.   But not yesterday,  I have so much that I’m excited for that it makes me tighter then normal.  CP is not the same every day well least mine isn’t,  that is what is the hard part of my cerebral palsy.  But it’s what I have to deal with to keep moving forward, all that to say there are many people who have it hard, and may not think they could be supported but you are; your journey may be hard but you are not alone!   Don’t hide you!

”No one wants to be discriminated against. No matter who you are, you have the same rights to life and equality as everyone else. This is the purpose behind the 2010 ADA Standards for Accessible Design. These standards as issued by the Department of Justice and the Department of Transportation ensure that Americans with disabilities have the same rights of access to public buildings as every other citizen of the United States.”(http://accessadvocates.com/why-the-2010-ada-standards-for-accessible-design-mean-equal-rights-for-you.)

Think about this;  as if someone discriminated against when there is nothing wrong with you,  you are able to do everything but someone doesn’t like something about you.   That what someone with a disability feels like what we get discriminated just because we are different.   We are all different the only difference between someone with a special need and the able-bodied is,  year not see their disability.

Disabled parking

what goes through your mind when you’re out and you see a parking spot for wheelchairs?  Do you take it?   Thinking you just have to run in for quick minute no one will notice.   Like the person with a wheelchair won’t need in the time you are in the store; you may have that thought that wheelchair uses can wait or just park somewhere else.   But the thing is when you have an accession van, or just a wheelchair; you are going to need the extra room to get out.those parking spots have a reason for being wider; even helping someone to get out of a car you are going to need the room.   It’s not there for anyone or just for a quick stop!
Before I got my accessible van,  I would need to have someone put my chair together than get me out and in the chair, my mom and I had a car park too close to the car, my mom thought we had enough room to get me in but as we tried; mom and I ended up on the ground between the two cars because there wasn’t enough room for me to get in.

This article tells more about why the disabled parking shouldn’t be a just quick run in opposition.

Sponsored

 

 

Going for a walk, when you are disabled

Last Thursday it was a great sunny day outside so I decided to go for a walk with my dog Simba.  I had just got a new phone holder for my wheelchair,  I wasn’t used to it yet and it didn’t have the sticky stuff that I use on everything I use because of my movements it helps if stuff does not move.   But my mom and I thought with the kind of holder it is I would be fine.   So I started on my walk with Simba, I went a longer way because I was enjoying being outside;  my foot pad had dropped off my chair I was trying to pick it up myself because there was not one around and when trying I dropped my phone.   I saw a car drive by I got them to stop and they came over to help,  now I was moving a lot and they tried to hand me my phone but I couldn’t hold on to it,  so they thought I couldn’t have a phone or be out on my own.  So they started texting the first person in my message box I had no idea that they had texted my friend who is in an another state, they got her freaked out that something happened to me.   Then they called my mom and said they found me that was all oh and where to come,  the other lady called 911!  While I am saying I could walk home (I do this all the time) they had my phone which has a talker app I use if I need to have people understand what I am saying but I couldn’t,  they could understand me some;  but when I could go on.  They said they knew I could get home but they would not let me go like a was a chance that couldn’t be on their own,  so just as I could see my mom walking towards me the fire truck came I started crying thinking they would take me away,  like my mom couldn’t take care of me.   Don’t know why I thought that but I did!  So the firemen saw my mom and I and that I wasn’t hurt,  he said that the ladies made this bigger than it needed to be.

I think the didn’t know anything about disabilities and I was moving so much,  thinking that I was hurt but if they knew what I was saying they shouldn’t have called the firefighters just asked me what I needed.

Disabled employment; not easy

I have a disability,  I need to be on med-aid to help pay for the help I need daily and my wheelchair and others things I need.   But I also want to have a job I am not one to stay home and think that became I’m disabled I don’t need to work.   When you are on mad-aid you can’t work a lot or you’ll stop getting the benefits.  So how could you work when you know the things that help you live a normal life might not be there if you get a job and start bringing in money;  I think that they (med-aid) should help us want to work;  shouldn’t let think we can’t work.   Yes if we can pay for all we need out of our money than it would be different.   But when people with disabilities have the thought that you shouldn’t work because of losing benefits,  you wouldn’t want to get a job but if your benefit group were helping you to get to where you don’t need them it would better than making us more disabled.

Ever notice how what you have a difference or a disability, the looks you get or people think of you as an hero just because you have a disability?   I get it a lot.   Its not right;  just because we have a disability doesn’t mean we are heroic.   We were born with it or something happened we have a disability.  To be a hero is more than just being disabled or because we are different,  a hero is someone who always puts others first!

Good information about the disabled community

Knowing what I know about the ADA ( Americans with disabilities act), this article about what some states are doing to better life for so many people with disabilities I hope that Colorado and the whole world could think like this.  The ADA is there to help people with disabilities have a normal life but like with anything the ADA could use an update.   There are a few states that are the disabled community are working in changing some laws in the ADA to better fit the community who needs it.

-http://cdrnys.org/blog/press-releases/analysis-of-the-2017-2018-executive-budget-proposals-that-impact-people-with-disabilities/

being disabled; what is the hardest part?

You have a difference you are disabled.You want to have a normal life, you have worked hard to go to school to get a job which you can do. Your disability is what people see before anything else, what you can’t do.  Your disability should not be what they think about when they are interviewing you or anyone that is knowledge about the work, but word disabled has been looked at badly that people don’t think, that being disabled could just mean different;  we are all different from each other! Yes I know it just one way to look at it, but it makes since just read it more closely you will understand; or maybe when you are disabled it seems right. If we can see your disability or not no one is normal or the same so why  do we think that having a disability that you can see is a big deal because it’s not; people who are disabled are just like you only thing is,  you can see our difference.

http://www.huffingtonpost.com/rachelle-friedman/a-life-lesson-about-peopl_b_4108613.html?

This a great article about how to teach children and all people that people who have a disability doesn’t mean you have to run from them.  We have a seeable disability, but you know that we are all disability in some way.

disabled children

when I was ms. wheelchair 2010, my  goal was to help teach families of children with disabilities, that him or her can do more than you think don’t limited them.   Schools and dr’s may tell you their kind of disability but  you should  see how your child learns and behaves before knowing that the child needs special education, see the child before the disability.  This article looks at some things that may help in that;


5 ways to improve the lives of children with a disability
by Chris Lenart | Dec 29, 2015 | Improving kids’ lives | 0 comments
Children with a disability have to be in a supported and have the same opportunities that the other kids have. For this discussion, I am going to focus on the child with a disability who is high functioning in terms of education. What I am going to say does not apply to all kids with disabilities. I am going to give you five points to think about today.
1. Allow the kids with disabilities to learn by making mistakes.
What I mean by this is that sometimes parents try to protect their child with a disability so that they don’t allow the child to fail at something. I feel that the parents want to protect them altogether because they are a person with a disability. My point is this – what will happen to the person with a disability if their parents are not around? Will they know what to do when they have to make a critical decision. When I moved into my condo almost six years ago, my dad and I had fights about how I was handling my money. Yes, I didn’t manage my money wisely, but I needed to learn the hard way. Everyone has to go through the hard times and learn from their mistakes.
2. The kids had not been taught something the right way so they don’t have learn the right way when they are on their own.
What I mean by this is that I have heard from people who have a disability that they didn’t learn math or reading properly in school. I think that this is a huge disgrace because it was not their fault from not learning at school. Basic math and reading are essential thing that you need every day. Sometimes I feel sorry for the person, but after the person says that they were cheated on their own education over and over, it gets tiring. We are living the best era of humanity because we have the internet to learn from.
3. The person with a disability can be more independent with proper technologies.
I see people with disabilities in a manual wheelchair and having a person pushes them around. If that person was me, I would go nuts. Where is the independence with having a person pushing you all around. Beside that, I know people who have a disability, can not work a computer by themselves. This blows my mind because they want to be independent. As kids who have a disability grow up, technology will get better. So why not help them learn to use technology for their benefit now. Google is working on a car that drives by itself. Technology is unlimited so we have so much to look forward in the next ten years.
4. Kids who have a disability have to have all of the opportunities that the other kids have.
In the school system and community, there are so many activities that kids have. But they don’t allow kids who have a disability to join. So there are activities that are set up for kids who have a disability. This is good to a point, but the kids with disabilities need to be with kids around their neighborhood. Integrating all kids together is the most important thing to do. The kids are most likely in the same school. If they are out of the school environment, they can socialize more. The friendship will grow at school and in the neighborhood.
5. To be a family, everyone has chores including the child who has a disability.
This might sound harsh to a point, but let me explain. Say the family has three kids and two have a weekly chore to do. Will the kid who has a disability learn responsibility? Maybe. Now if the child who has a disability has a chore, they will learn responsibility. Let’s say the child does not have the ability of doing a chore by themselves. Maybe allow the kid to work with their sister or brother. This way they learn responsibility that I feel many people who have disabilities are lacking these days. I hope that I have given you some food for thought. I don’t want to sound too harsh but after living on my own and seeing how other people with disabilities act, I have gotten to a point where I don’t like what I see.

think about this;what would you do if you couldn’t walk or if you find out that your child would not be able to walk?  I am sure that thought is not one you want to think about.   But just image what it would be like to have everything you were able to do on your own; now you need help with everything even eating, for me it’s my life but I can image for anybody who had the freedom to do anything   but now it’s different.  You began to understand what a wheelchair can mean to someone who only knows that life.  A wheelchair is more than a thing; it becomes a part of you,  especially nowadays with how much a wheelchair can help us do, you may see that a wheelchair can make a big differences in someone’s life.

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ever had one of those weeks where everything goes wrong?  That was my week about two weeks, it seemed like everything, that makes my little easier was not working it was hard,  I couldn’t anything!   I was getting annoyed with my  disability and realizing that I may not get a new intellikeys  keyboard which is how I can do everything that I love working, writing/helping others it was all coming down.  I still don’t have a new keyboard,  but I need to keep busy I need to feel like I can do stuff .  When you have a disability that there are only a few things that you can do without  help, it’s important to find a way to be as independent. Especially  if you need help with everything else.  I don’t like when I  cant do anything.  I try to see the good in each day but the last two weeks I couldn’t.  I was feeling down and it wasn’t like me to want to give up  trying to work or  see if something good could happen that is not me!   I am back.    I’m still trying to get a new keyboard and  honestly it doesn’t look like it will be  an easy fix  but I won’t give up.*

Being disabled to me is apart of what makes me who I am.   I was born with CP, so I know there are going to be people who can’t see passed it, I understand that.    But when I go out and someone who see me; than acts like I am amazing just because I have cerebral palsy before getting to know me,  it’s a little crazy!   Just because my life is a little different or harder doesn’t mean I am ”a hero”   yes it can be  harder than someone doesn’t have a disability but get to know me someone who has a disability,  before you think they are amazing.  For me it’s not a big deal its part of my life,  I can imagine for someone who could walk and now can’t it may be a while before they are comfortable with their new life.   Being different or disabled can be hard at times but who’s life is easy all the time!   My disability doesn’t mean I am amazing just because I am different, get to know who I am being you think you know that I’m or anyone who is disabled.

Technology has helped the disability community.

I have just started using a smart phone with the help from my power chair,  with special buttons and my joystick I am finally able to use something I thought I would never use!   My movements are so hard/crazy that I couldn’t use it;  I would press all the buttons, everything I don’t want to press.   Now because of the new technology a phone can be use by a power wheelchair,  it helps someone who has a disability use something that without that we could not.   I know for me having a smart phone has been a great thing to help me become more independent, I have a harder time being understood,  now I can use the note book on the phone to help people understand me.  I know technology has helped everyone.   But for the disability community technology has his our lifes a little easier.

Ask before helping

It is a habit for everybody, if you see somebody who needs help you want to help them. But to someone who is disabled it might not come across the way you would think.  As a person who needs help for everything; I can tell you that sometimes I will not take the help not because I don’t appreciate the offer.  But I would like to try before you think I need help.  Yes it may seem like it would be easier to just help a differently abled  person but maybe they would like to try to be more independent and find a way to do it. For some of us who use power wheelchairs to get around;  sometimes we will meet people who do not know that we are the only ones who can move it easily and if we need help we will ask, we can do everything just in a different way.   Having a disability comes needing help with daily life things that would be easy to someone who is  ”abled body”.  It doesn’t mean that we can’t do things if someone is differently abled it just means we have to do things in a different way.   So to you who are abled body the next time you see a person who is differently ask if you can help them before you do.

Information about CP

Here is some information about CP.  I will post about all different kind of disabilities.   I have Cp, so most stories about CP,because it effects my life and I would like to bring more awareness and to understanding to this disability “differences”, as well as many others. -http://www.curehealth.info/11-important-things-everyone-know-cerebral-palsy/

 

Cp

 

There are so many different kinds of disabilities some we don’t even think of as a disability. Look up the word disability, ”Disability is an impairment that may be physical, cognitive, intellectual, mental, sensory, developmental, or some combination of these that results in restrictions on an individual’s ability to participate in what is considered “normal” in their everyday society.” But is anyone exactly the same? No,we all have a difference and that to me is a disability. But people who are so called normal they aren’t, being normal to me means we would all be exactly the same but we are different from each other which is amazing.  So think about this; why when people see someone who has a visible difference why are they named disabled why isn’t everyone? I think it’s because people who are “disabled” need more help daily.   I agree that does make sense but don’t you sometimes need a little more help?  I have Cerebral palsy, Athetoid, Main article: Athetoid cerebral palsy Athetoid cerebral palsy or dyskinetic cerebral palsy is mixed muscle tone — hypertonia and hypotonia mixed with involuntary motions. People with dyskinetic CP have trouble holding themselves in an upright, steady position for sitting or walking, and often show involuntary motions. For some people with dyskinetic CP, it takes a lot of work and concentration to get their hand to a certain spot (like scratching their nose or reaching for a cup). Because of their mixed tone and trouble keeping a position, they may not be able to hold onto objects, especially small ones requiring fine motor control (such as a toothbrush or pencil). About 10% of individuals with CP are classified as dyskinetic CP but some have mixed forms with spasticity and dyskinesia. The damage occurs to the extrapyramidal motor system and/or pyramidal tract and to the basal ganglia. In newborn infants, high bilirubin levels in the blood, if left untreated, can lead to brain damage in the basal ganglia (kernicterus), which can lead to dyskinetic cerebral palsy.[citation needed.)”‘   This is one thing which makes me different.   What makes you different from anyone else?

This is a great article written by an close friend who knows a lot about the disabled community,  she has  a great view in this topic; education for the disabled children. I agree with her,  as someone who has been through two schools systems one of them was not as best into the disabled as what could the child use to work more in.   I don’t think that he should have been taken out of school , I think the school with his mind could have worked together to create a way that would help the rest of the school and the community to have a better understanding of a person with a disability. I know this story is about one child but I think about schools and communities should try to be more including of those with disabilities.

-http://www.amchp.org/AboutAMCHP/Newsletters/Pulse/JulyAugust2016/Pages/From-the-President.aspx.

 

This is something I totally agree with.

Because many of them have achieved what we couldn’t, even when we have all the means, period. Hello everyone! World is so full of different kinds of people. Long legs, short hair, warm complexion, skinny frame, large eyes, small mouth, nose that does not look straight (I do not know the exact word. Please, enlighten […]

via Disabled vs Specially-Able — Eloraquence

  • I have a disability that it’s very easily seen; some disabilities are invisible,  we all have some kind of disabled .  But when someone who has a disability goes out and tries  to have a life not letting our disability get in the way to the having a normal life.  When you think about us all having a disability doesn’t it make you wonder why if you are different you get looked at? The more we get to know somebody the more we see how alike we are.   When someone who hasn’t been around people with disabilities, they don’t understand/know that just because some of has a disability, but if the disabled community was not seen as different by schools,  governments groups and others;  maybe disabled people wouldn’t have to always explain their differences.   Thinking about it in this way wouldn’t you want to change the way differences are thought of?  People who have disability can do the same things as an abled person, it may be in a different way but people with disabilities aren’t that different from the “normal” person.   The government has placed people with disabilities in a group that people think they need to be shameful,  very helpful or the opposite;  not knowing what is a disability and not knowing how to communicate with someone who has a disability.  We can start by not dividing children in schools and teach them that disability or not we are all equal!

https://thinkprogress.org/disabled-voters-feeling-ignored-by-candidates-take-election-into-own-hands-ce0a495c5ec2#.xuzs80d0o. This year’s candidates don’t realize that by ignoring the disability community and the issues like,  medical coverage or the many issues that not only affect those who are disabled but everyone.  People who aren’t disabled follow the two candidates may think that it’s fine to ignore the people who are different; when the candidates should be understanding of the disabled community,  rather than ignoring them because the candidates might not know much about disabled people.   Some of the issues they don’t speak on are Unemployment. Incarceration rates. Access to education. Medicare coverage gaps. Reproductive rights, these are important issues which everyone at some point in life has needed something in one of these areas.  There is a lot to think about; as a disabled person voting.   

I can’t walk but it doesn’t mean I can’t think or that I have a learning disability.   I am physically disabled!   Sometimes when I am out with family, friends and or on my own,  I will sometimes get a person who will act as if I can’t think or they will talk to me in  ”baby talk”, if I am with someone they will talk to them about me!  I understand that some people are not comfortable with people who have a disability, but why?   When we all have some kind of difference we all have some kind of disability which is what makes us unique.   So why is it so weird that I can’t walk and I talk funny,  there is nothing wrong with my mind!   If you have questions about my disability you can ask me not the person I’m with. I have CP, so what!   There is so much more about me than just my disability!

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To all my friends in chairs; or anyone who agrees with me that no matter if you are so called “normal” you still have some kind of difference which I would call it a disability. First do you think that everyone has a disability? If we were all the same the word we wouldn’t have any needs or differences. 2ed. What would you do to help someone who hasn’t had any experience with a person who has a visible disability; know that we are all the same?