Category Archives: Cerebral Palsy

How can I help people with depression you may ask, I am a happy person! I am, but I also know what it’s like to be different or have people not understand you. Depressed can be hard to handle at times, especially if you are alone and people tran you away because of it! Even though it is not something you can help, like my cp there are stuff that you can’t help. The feeling of being lonely and maybe it’s harder because your depression can make it harder time telling others what you are feeling. Not being able to talk to someone could make depression wrost on you. I want to help people who feel lonely.

Love!

Love can be hard sometimes but it’s worth it! It is the most important thing we can give maybe even the one thing that could save someone’s life! Love helps depression you might be asking? Yes it does help! Just knowing that you have someone who wants you in their life could mean the world to someone when they are going through depression and wanting to end their own life. Just LOVE!

Today is suicidal prevention day,  because of what I want to I think it’s should be written about.   Depression anxiety is real and in my view it is seen as something we can just look over as if somebody just made up that they are depressed.  Its not;  the way I understand it,  it is as if your mind takes over your thoughts and feelings and you can’t help your feelings when you are depressed.  I am a happy person so me writing about this is kind of weird,   but first a few of my dearest friends go through depression and anxiety on a daily bread and I know that people out there are very understanding which makes you want to hide it,  but what is most needed is to know you are loved!     This is what I am working on my blog facebook page/group to be about.   Less suicides if they know that they are loved,  is my own views on this but maybe this is more needed to help.  But that is how I want to make a difference.

this month

Having a difference that everybody can see I think can be a little easier, than the differences you cannot see.  Having a disability all my life,  I have learned how to explain to others what my disability is and if they are open to differences I have a new friend.  But that is not always the case because people are afraid of something new, yes I have a wheelchair I don’t talk well but I can get people to get comfortable with my disability.   So if you have a mental illness I think it’s harder for others to understand what you are going through.  This month is mental illness awareness mouth,  each day there is someone who has to hide who they are just because others don’t understand how mental illness can just take over the body and you don’t can’t get out of it,  it’s not you.   People who have mental illness might just need someone to understand them just be a friend.   Is not something we can’t help we can.   If we take the time to understand how mental illness works.

lonely

Depression can be lonely. Its hard to know how much to help; or not to say the wrong thing. These thoughts we all, even me and I want to help people who depression not because I know about it;  but I could help being their happiness back or just even just be there when its really needed.   I feel like depression is an illnesses that people ran from, just they don’t understand , don’t think they know what to say.  Here is the way I say it,  its not about knowing what to say but first just be there nothing else could help them more than knowing that someone is always there!   Just knowing that they are loved and someone is there ready to talk or be a friend whom no one else will.

Being in a wheelchair you would think it would be easy to be seen!   It’s not;  I was at the hospital visiting a friend and I realized that another friend of mine worked there,  so we went to see if she was in.   I was rolling down the hall way of the hospital with my father and friend staying to one side so others could pass through thinking that way I won’t ran into anyone.   So I thought, , now I don’t expect people to move out of my way, though my body does not always listen to what I want to do.  But I always try to make others can get by me.     So as we were walking I don’t  think anything about that the other people were gone to close to my wheelchair before moving over to the other side even though I was on the side; my friend saw and said people are just walking like you’re not there.   I get out of two reactions from  others who don’t know me,  first is very helpful;  second is ignoring me because of my disability. Why  is being in a wheelchair such a big thing it is the way I can get around!

Mental illness

Today is mental illness awareness day, depression, suicide and many others disabilities in which nobody can see.  The hardest difference to talk about, there are many different thoughts on this topic; even if you deal with depression it may be different in your life than anyone else.  It is so different for everyone, for some talking about it helps them, others just hide it.   I don’t know very much about mental illness but it’s one topic I want to help.

Good to know.

As you know;  I am working on becoming a online mentor,  I want to help in different topics including disabilities,  depressed and bipolar depression.   I am disabled , people can see my difference and I can explain why I am the way I am but it still hard for people to us my CP.  But the two other differences I want to help in or just be a support in depression and bipolar; you don’t see if someone is dealing with it. I can understand that whoever has either of bipolar or depression;  first it is the easy to tell someone second you feel different and from my experience people don’t see differences even though we all are different!   But if you have a differences you can face loneliness and much more hard things than your difference,  I get it all the time I may not be a doctor,  but I understand what it’s like to a name called just because of something I can’t help.    But back to bipolar;  this is what it is ‘’ What Are the Symptoms of Bipolar Disorder?

In bipolar disorder, the dramatic episodes of high and low moods do not follow a set pattern. Someone may feel the same mood state (depressed or manic) several times before switching to the opposite mood. These episodes can happen over a period of weeks, months, and sometimes even years.How severe it gets differs from person to person and can also change over time, becoming more or less severe. Symptoms of mania (“the highs”):

  • Excessive happiness, hopefulness, and excitement
  • Sudden changes from being joyful to being irritable, angry, and hostile
  • Restlessness
  • Rapid speech and poor concentration
  • Increased energy and less need for sleep
  • Unusually high sex drive
  • Making grand and unrealistic plans
  • Showing poor judgment
  • Drug and alcohol abuse
  • Becoming more impulsive

During depressive periods (“the lows”), a person with bipolar disorder may have:

Here is an over view of bipolar depression, I know I couldn’t fix this or depression, but if we start learning about it, I might be able to help someone with either depression and or bipolar diseases.

I have Cerebral palsy the crazy kind I like to tell people!  I’m always moving and not because I want to, its uncontrollable yeah I make fun of myself half the time!   I am hard to understand, I like to think I don’t give up easily,  its can get hard but I have to keep going because I know I have the best support team batting with me!   I live on my own but I have a roommate and caregivers that came and go through the day.   Like anyone my age I am in the place in my life, I’m still trying to fugue out what I want to do with my life but I know CP  is not keeping me down!   Cp day is March 25th.

Have you ever imagined your life different?  If you are in a wheelchair; you will understand this more.   I am in a wheelchair and need help getting out of the chair; I am on my own half of the day.   Nominally its ok; I can get my work done or just have some time to myself but what happens if I need to go,,,, or if I need to get out of my chair; I cannot!   I could probably find a way but I can’t go P on my own, that is the only thing about being home alone that sucks!   I was talking to a friend about how I could not imagine how if I could walk and just go wherever I wanted to, I could not see myself as an able-body!  I guess because my CP has always been a part of me, it would be weird to think about me walking!   Its just me, not saying that I am just cp but it is the only thing I know.   Having people help me though my day though life!

I just saw a post about breaking the silence towards mental illness and I couldn’t agree with that more!   I don’t deal with depression or mental illness but I know people who have and I want to be a person could may be change the way we think about it; just like I want to do for the disability community.   Because I don’t like the way its looked at.   In a way it is like saying to me; why don’t you walk?  Its not something people can help; maybe something happened that left a bad impact on them, or it just is.  I know there is much more that is a mental illness I’m still learning but this important to me.  I don’t think depression well enough supported; maybe I can’t do much but I will try to.
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Having a physical disability can be hard sometimes but you can explain to people how to help you or you know what works for you.  A disability that can be seen you are able to teach others and also bring awareness to it.  But a mental illness is not that easy to explain.  Here is a reason why I think it’s harder to tell others about mental if you have depression or some kind of mental illness;  I think people think it’s all in someone’s head that you have depression but as I read more about mental health is not just in their hands.   Sometimes it is something that they can’t control or even something from their past that has left hurt that they don’t think they feel they can let go of.  Or maybe that is just a disability.   This article about someone who is sacred to tell her story just because others don’t see that having a mental illness is a disability.  https://themighty.com/2017/05/scared-my-mental-illness-makes-me-hard-to-love/.
This is one reason I want to help people who feel like they can’t talk about mental health.

I have cerebral palsy so this article I like and agree with the message that having any kind of disability is not something to be afraid of or having others make fun of.  Its a difference that people un-sure of,  but we can teach others about different disabilities and maybe we could change the way having a disappearing is seen.

https://worldcpday.org/people-with-cerebral-palsy-are-justlikeyou/

 

Kinds of Cerebral palsy.

https://themighty.com/2017/03/things-everyone-should-know-about-cerebral-palsy/?utm_source=Facebook&utm_medium=CerebralPalsy_Page.

I think this article is awesome,  it gives decisions of all the difference kinds of CP because there are so many ways that CP, its not one type but even knowing what kind someone has it can every from person to person.   I have Ataxia is the least common form of cerebral palsy. Ataxia means ‘without order’ or ‘incoordination’.  It is not a common type which can be hard sometimes;  when I need to tell people about it,  or I just say I have the crazy kind!

‘Ataxia is the least common form of cerebral palsy. Ataxia means ‘without order’ or ‘incoordination’ Ataxic movements are characterised by clumsiness, imprecision, or instability. Movements are not smooth and may appear disorganised or jerky. The incoordination seen with ataxia occurs when a person attempts to perform voluntary movements such as walking or picking up objects. Ataxia causes an interruption of muscle control in the arms and legs, resulting in a lack of balance and coordination.’

My cp hurts/hard day

My CP can be so tight and in doing excise or anything else can be so hard, but I keep going yesterday was an tighter day.   I had to go to project walk and nominally it helps.   But not yesterday,  I have so much that I’m excited for that it makes me tighter then normal.  CP is not the same every day well least mine isn’t,  that is what is the hard part of my cerebral palsy.  But it’s what I have to deal with to keep moving forward, all that to say there are many people who have it hard, and may not think they could be supported but you are; your journey may be hard but you are not alone!   Don’t hide you!

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ever had one of those weeks where everything goes wrong?  That was my week about two weeks, it seemed like everything, that makes my little easier was not working it was hard,  I couldn’t anything!   I was getting annoyed with my  disability and realizing that I may not get a new intellikeys  keyboard which is how I can do everything that I love working, writing/helping others it was all coming down.  I still don’t have a new keyboard,  but I need to keep busy I need to feel like I can do stuff .  When you have a disability that there are only a few things that you can do without  help, it’s important to find a way to be as independent. Especially  if you need help with everything else.  I don’t like when I  cant do anything.  I try to see the good in each day but the last two weeks I couldn’t.  I was feeling down and it wasn’t like me to want to give up  trying to work or  see if something good could happen that is not me!   I am back.    I’m still trying to get a new keyboard and  honestly it doesn’t look like it will be  an easy fix  but I won’t give up.*

Information about CP

Here is some information about CP.  I will post about all different kind of disabilities.   I have Cp, so most stories about CP,because it effects my life and I would like to bring more awareness and to understanding to this disability “differences”, as well as many others. -http://www.curehealth.info/11-important-things-everyone-know-cerebral-palsy/

 

Cp

 

There are so many different kinds of disabilities some we don’t even think of as a disability. Look up the word disability, ”Disability is an impairment that may be physical, cognitive, intellectual, mental, sensory, developmental, or some combination of these that results in restrictions on an individual’s ability to participate in what is considered “normal” in their everyday society.” But is anyone exactly the same? No,we all have a difference and that to me is a disability. But people who are so called normal they aren’t, being normal to me means we would all be exactly the same but we are different from each other which is amazing.  So think about this; why when people see someone who has a visible difference why are they named disabled why isn’t everyone? I think it’s because people who are “disabled” need more help daily.   I agree that does make sense but don’t you sometimes need a little more help?  I have Cerebral palsy, Athetoid, Main article: Athetoid cerebral palsy Athetoid cerebral palsy or dyskinetic cerebral palsy is mixed muscle tone — hypertonia and hypotonia mixed with involuntary motions. People with dyskinetic CP have trouble holding themselves in an upright, steady position for sitting or walking, and often show involuntary motions. For some people with dyskinetic CP, it takes a lot of work and concentration to get their hand to a certain spot (like scratching their nose or reaching for a cup). Because of their mixed tone and trouble keeping a position, they may not be able to hold onto objects, especially small ones requiring fine motor control (such as a toothbrush or pencil). About 10% of individuals with CP are classified as dyskinetic CP but some have mixed forms with spasticity and dyskinesia. The damage occurs to the extrapyramidal motor system and/or pyramidal tract and to the basal ganglia. In newborn infants, high bilirubin levels in the blood, if left untreated, can lead to brain damage in the basal ganglia (kernicterus), which can lead to dyskinetic cerebral palsy.[citation needed.)”‘   This is one thing which makes me different.   What makes you different from anyone else?